The organizations below offer further resources for patients and caregivers.
Federal and state assistance
- Federal government programs help with medical and living expenses. This resource is a portal to find information on health insurance, Medicaid, Medicare and other ways to pay for medical care: usa.gov/health-insurance
- The U.S. Department of Health and Human Services (HHS) provides programs and services at the state level, such as social services, health insurance, healthy prevention services/programs, assistance finding a doctor, and much more: hhs.gov/programs/index.html
- HHS also has a search tool to help you locate local health centers. These centers serve people who need affordable low-cost medical care: findahealthcenter.hrsa.gov
- U.S. Administration on Aging’s Eldercare Locator can help locate financial resources and programs for older adults and their families: eldercare.acl.gov/Public/Index.aspx
- The U.S. Department of Veterans Affairs (VA) provides tax-free benefits to qualified veterans and their families in certain situations. benefits.va.gov/benefits/
- The Affordable Care Act (ACA) was a law passed to make health care more affordable, accessible and of a higher quality for Americans, including previously uninsured persons. Find health insurance coverage through the website: healthcare.gov
Help finding cancer treatment
- NCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its specific research capabilities, programs, and initiatives. cancer.gov/research/infrastructure/cancer-centers/find
- The U.S. Food and Drug Administration (FDA)’s Expanded Access program, formerly called “compassionate use,” can give patients access to an investigational drug outside of a clinical trial: fda.gov/news-events/public-health-focus/expanded-access
- The FDA’s Patient Network provides up-to-date information for patients and advocates about medicines available in the U.S. fda.gov/patients
- The National Institutes of Health (NIH) maintains a database of public and privately funded clinical trials around the world. You can use this database to find a clinical trial that may work for your diagnosis: clinicaltrials.gov/ct2/help/for-patient
- To find a clinical trial that is directly funded by the NIH, you can use this search tool: cancer.gov/about-cancer/treatment/clinical-trials/search
Find a lung cancer screening center
- American College of Radiology (ACR) has a lung cancer screening locator tool that provides a list of ACR verified screening centers. acr.org/Clinical-Resources/Lung-Cancer-Screening-Resources/LCS-Locator-Tool
Free biomarker testing for eligible people
- Eli Lilly & Company offers the Lilly Lung Cancer NGS Program, where eligible people can receive comprehensive biomarker testing at no cost. Download an information sheet in English or Spanish to learn more.
Get matched with a lung cancer survivor or caregiver
Talk with someone who understands. In collaboration with Cancer Hope Network, the Lung Cancer Research Foundation offers lung cancer patients and caregivers the opportunity to be matched with a trained volunteer cancer survivor or caregiver who has been through a similar experience. Complete a brief form to start the matching process, and a Cancer Hope Network Patient Services Coordinator will contact you to ask a few simple questions and get you connected. Fill out the form here to get started.
Patient support groups
- Biomarker Collaborative: biomarkercollaborative.org
The Biomarker Collaborative is a community of biomarker groups dedicated to helping patients with a biomarkers live normal lives.
- ALK POSITIVE: alkpositive.org
- BRAF Bombers: facebook.com/groups/1077213015965166
- EGFR Resisters: egfrcancer.org
- Exon 20 Group: exon20group.org
- KRAS Kickers: kraskickers.org
- MET Crusaders: metcrusaders.org
- RET Renegades: facebook.com/groups/RETlung
- ROS1ders: theROS1ders.org
- Dusty Joy Foundation: livelung.org
- The White Ribbon Project: thewhiteribbonproject.org
Learn more about lung cancer research
- American Association for Cancer Research (AACR): aacr.org/patients-caregivers/
- International Association for the Study of Lung Cancer (IASLC) iaslc.org/patient-advocacy
- National Comprehensive Cancer Network (NCCN): nccn.org/patients/default.aspx
Share your insights and improve support
The Cancer Experience Registry (CER) survey from Cancer Support Community (CSC) uncovers the emotional, physical, practical, and financial impact of cancer to help patients and caregivers get the support they need.
Once you complete the survey, you become part of a registry of patients and caregivers with the opportunity to complete follow-up surveys that track changes over time, or additional surveys that ask about emerging topics in cancer care.