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The Lung Cancer Research Foundation (LCRF) is excited to announce a partnership with leading lung cancer patient advocacy group, the EGFR Resisters. This multi-year partnership will kick off on June 6, National Cancer Survivors Day, in a joint effort in 2021 to fund research related to EGFR positive lung cancer.

People with EGFR positive lung cancer represent a significant number of patients diagnosed with non-small cell lung cancer. Approximately 10-15% of patients with non-small cell lung cancer in the United States and 35% in Asia have an EGFR positive mutation. In the U.S., more than 20,000 people are diagnosed with EGFR positive lung cancer each year. Although there has been an increase in progression-free survival in patients due to targeted therapy with EGFR TKIs (Tyrosine Kinase Inhibitors, commonly known as TKIs), the cancer eventually develops acquired resistance which means more research is desperately needed.

Hear LCRF Scientific Advisory Board chair Dr. Katerina Politi explain why this research is so important:

LCRF has a history of funding important work related to EGFR, including that of Dr. Matthew Meyerson from Dana-Farber Cancer Institute, whose early work, funded through LCRF, led his group to discover the EGFR mutations in lung cancer, which set the stage for the field of genome-targeted therapy.

The goal of the EGFR Resisters is to improve outcomes for people with EGFR positive lung cancer by accelerating research. Their ultimate objective is changing EGFR positive lung cancer into a manageable chronic disease.

“We are thrilled to work with the EGFR Resisters,” said Dennis Chillemi, LCRF Executive Director. “Partnering with this extraordinary group no doubt allows us to better understand this particular mutation and acquired resistance to first-line therapy for these patients. We are confident that this partnership will accelerate research discovery and save lives.”

NEW YORK, June 2, 2021 – The Lung Cancer Research Foundation (LCRF) is pleased to welcome two new members of its Board of Directors, Colleen Conner Ziegler and Bruce Dunbar.

Colleen Conner Ziegler has recently joined the LCRF Board of Directors. She is a lung cancer survivor and active patient advocate, diagnosed in May 2015 at the age of 58 with Stage IV ALK positive Non-Small Cell Lung Cancer. She began, and is currently receiving, Alectinib as her first line of treatment and recognizes that research has made her treatment possible.

After a 22-year career in the pharmaceutical industry, Ms. Conner Ziegler served in a variety of community-focused endeavors, including service on several Boards of Directors and Advisory Boards. Her primary focus prior to her diagnosis was on children’s education as well as woman’s health issues.

Following her lung cancer diagnosis, she turned her focus to lung cancer advocacy. Her advocacy work includes:

  • Founding member of Life and Breath (LAB), a grass root lung cancer organization, with the goal of raising awareness of lung cancer as well as funding for research
  • Founding member of ALKFusion, a patient driven organization whose vision is to initiate and support patient-centric research
  • Currently active ALKFusion representative, Lung Cancer Action Network member, LCRF Strategic Plan Taskforce member
  • Participated in the Department of Defense Lung Cancer Research Program
  • Volunteered with the Lungevity Peer-to-Peer mentor program that connects newly diagnosed patients with a mentor to guide them through their diagnosis and treatment
  • Participated in patient focused videos and print materials on lung cancer diagnosis, advocacy and living with lung cancer and Genentech’s ALK Positivity Project
  • Volunteered with GO2 Foundation’s annual Voices Summit
  • Co-authored and presented Patient Advocacy poster at the 2019 World Conference on Lung Cancer, Barcelona, Spain

Ms. Conner Ziegler lives in Rochester, New York with her husband, Tom, and their daughter Taya.

Bruce Dunbar has joined the LCRF Board after being involved with the organization since his diagnosis with Stage IV Non-Small Cell Lung Cancer in 2017.  As a direct beneficiary of lung cancer research, Mr. Dunbar is an active advocate for further efforts to improve screening, detection and treatment.  In addition to his involvement with LCRF, he serves as a Consumer Reviewer for the Lung Cancer Program of the Congressionally Directed Medical Research Program and advocates for federal funding for lung cancer research through the GO2 Foundation’s annual Voices Summit.

Mr. Dunbar’s career spans more than 30 years in a variety of corporate communications, marketing and advertising roles including serving as Senior Vice President and Director of Corporate Communications for OppenheimerFunds, Inc. and Managing Director, Head of Wealth Management Communications, for Morgan Stanley.  He also held senior client advisory roles at Teneo and Finsbury, Glover, Herrington and is currently a partner in communications advisor Coppertop Media.

Mr. Dunbar received an AB in History from Princeton University and an MBA from Columbia University’s Graduate School of Business.

“We are delighted to welcome both Ms. Conner Ziegler and Mr. Dunbar to the LCRF Board of Directors,” says Dennis Chillemi, Executive Director. “Their patient experience, passion for research, personal philanthropy, and many connections within the lung cancer community will bring a more diverse perspective to LCRF as we continue to bring hope to the lung cancer community through research.”

To learn more about LCRF and its Board of Directors, visit www.LCRF.org/board.

May is:
Women’s Health Month
National Cancer Research Month

We are #TogetherSeparately™

When you think about a typical lung cancer patient, what does that person look like? If, like many people, you immediately imagine an elderly man, you are missing the full picture.

The reality is that lung cancer is the leading cause of cancer death in women. Lung cancer takes more women’s lives each year than breast cancer, uterine cancer, and ovarian cancer combined. Many of them are non-smokers, and even never-smokers.

That’s why it’s important to know the facts about lung cancer and its impact on women. Learn the statistics and meet some of the women who have shared their experiences as patients.

May is Women’s Health Month, and LCRF invited Dr. Isabel Preeshagul to present #TogetherSeparately: Women & Lung Cancer on May 19. Watch the livestream below:

“I didn’t think cancer could happen to me at age 29,” said Elizabeth Moir in a recent article published by Women’s Health magazine. Elizabeth was in the third trimester of her second pregnancy when she woke up with severe chest pain and rushed to the ER. She was diagnosed with calcified granuloma, a small, noncancerous spot of inflammation, and gave birth to a healthy baby girl two months later.

Getting back in shape proved to be difficult, and Elizabeth was alarmed when she started coughing blood. She was referred to a pulmonologist.

Elizabeth with her family in October 2020

“After a bunch of tests, scans, and a second opinion, I was diagnosed with stage IV lung cancer that had spread to my liver and my bones,” Elizabeth said. Testing revealed that her cancer had the ALK mutation, which meant she was a candidate for targeted therapy. She began taking a pill that stops the spread of cancer cells by blocking the action of the mutation.

In July 2019, she had a scan which showed no evidence of disease. Because research led to the discovery of targeted therapies like the one she’s on, she is “back to living a pretty normal life.”

“I want young women to understand how important it is to be your own advocate and take your health seriously—because I didn’t.”

Read the full article here.

Marty Berzow

By Cyndi Berzow

It’s been a little over two months since my incredible father left us, and it is hard to understand if it is getting easier. I find myself scrolling constantly through our texts and reliving our loving father/daughter relationship, our funny banter, reading his words and being able to feel his desire to continue to live life and conquer all the punches that this cancer was throwing at him with determination and wit.

It was Labor Day weekend 2018 when my father called me to tell me he had been diagnosed with small cell lung cancer. He broke down on the phone as he tried to get the words out and then started our journey as a family to help him not only beat this but also come to terms with living with cancer. It’s a strange thing to support someone living with cancer. In many ways it is monumental, significant and upsetting – and at the same time, life goes on and the meds and the treatment become woven into your existence almost like you forgot what it was like without it.

My dad incorporated treatment as a way of life. Marty’s kind, funny and easy-going nature was palpable, and he became fast friends with the nurses and doctors that were helping him weekly. He was almost like a celebrity, walking through the infusion center at Hudson Valley hospital, with my mother by his side every treatment (until COVID restrictions prevented that). He became used to the sleepless first night after chemo, the aches and pains, the ups and downs of the doctor appointments. He took it all in stride with a survivor mentality. The smartest of men, he understood exactly what was happening to him and that mind over matter was how he was going to get through this.

In November 2020 he got a clean bill of health; chemo had him in the clear and radiation had worked on the last two tiny tumors – we were elated. We celebrated all the wins, because even the smallest was a huge feat. Nothing prepared us for what was to come and suddenness of losing the rock of our family.  

A bleed within a mass in his brain came out of nowhere. He didn’t sound right, his voice was soft, his words not as clear. The hospital during COVID was the last place anyone wanted to be, but it was imperative. My dad being my dad, drove himself to the emergency room. No one was allowed to be with him because of the pandemic. He Facetimed me in his gown and I wish with every part of my being that I knew that would have been the last real conversation we had. He had suffered a stroke.

My mom, brother and I spent the next two weeks taking turns spending every second we were allowed with my dad. We had every reason to believe he would recover and go to rehab and we would look back on this as a family as another hardship that we conquered. The roller coaster of a prognosis was torture and the reality of what was to become of life without my dad was unimaginable. As a family we honored his wishes. We played his favorite music, I put the Mets classic games on the television, and we even got a message from the legendary New York Giant Carl Banks to tell him how undeniably amazing he was.

Dad, I’ll never forget

I held your hand with my head on your shoulder as it always was, and I know you know I was there as you passed. Every part of who I am is because of you. Your kindness, your humor, your passion for music and astronomy. The smartest man with the biggest most patient heart. You sacrificed so much for me growing up so I could have everything you wanted for me. You are the definition of unconditional love. I told you every single day how much I loved you and adored you. I am so lucky to have had you for as long as I did. Rest in Peace, we will see you again my wonderful, amazing, loving, kind and incredible father. We will miss you forever.

I got you.

I love you the most.

I love you forever.


To view Marty’s digital plaque or add a memorial for a loved one who has passed, please visit LCRF’s In Memoriam page.

Elizabeth Moir passed away on August 27, 2021 from complications caused by Stage IV lung cancer. She was 32 years old.


May 2021

“I didn’t think cancer could happen to me at age 29,” said Elizabeth Moir in an article published by Women’s Health magazine. Elizabeth was in the third trimester of her second pregnancy when she woke up with severe chest pain and rushed to the ER. She was diagnosed with calcified granuloma, a small, noncancerous spot of inflammation, and gave birth to a healthy baby girl two months later.

Getting back in shape proved to be difficult, and Elizabeth was alarmed when she started coughing blood. She was referred to a pulmonologist.

Elizabeth with her family in October 2020

“After a bunch of tests, scans, and a second opinion, I was diagnosed with Stage IV lung cancer that had spread to my liver and my bones,” Elizabeth said. Testing revealed that her cancer had the ALK mutation, which meant she was a candidate for targeted therapy. She began taking a pill that stops the spread of cancer cells by blocking the action of the mutation.

In July 2019, she had a scan which showed no evidence of disease. Because research led to the discovery of targeted therapies like the one she’s on, she is “back to living a pretty normal life.”

“I want young women to understand how important it is to be your own advocate and take your health seriously—because I didn’t.”

Read the full article here.

A bestselling author, Annabelle Gurwitch, appeared on Good Morning America to talk about her recent diagnosis with Stage IV lung cancer. LCRF grantee Dr. Triparna Sen was featured during the segment and addressed the funding gap for lung cancer research as well as the need for public awareness.

Gurwitch shared that she was on a medication that had been approved in the last five years that is allowing her to “have a pretty normal life,” but acknowledges that the cancer will “eventually outsmart it.” Further research is vital for developing additional treatments so that patients have options when this happens.

Correspondent Will Reeve shared that his mother, actress Dana Reeve, died of Stage IV lung cancer 15 years ago. “Unlike Annabelle, she did not have this targeted gene therapy available to her.”

“More can and must be done to help the tens of thousands of people diagnosed with lung cancer each year.”

Watch the segment here.

Dr. Sen on Good Morning America

The Lung Cancer Research Foundation is turning the Sound Up for Lung Cancer as it works to improve and expand health equity for all lung cancer patients. In the video below, Dennis Chillemi, LCRF Executive Director, details new initiatives aimed at reaching medically underserved communities.

Special thanks to Novartis for collaborating with LCRF on #SoundUp4LungCancer.